In 2012, I welcomed in the New Year with a head cold and/or sinus infection. Normally I can beat these in a day or so by basically going to bed and sleeping until I'm better (I hate walking around dripping.) But this time it hung on for nearly a week. No, I didn't stay in bed after the first day or so - it wasn't working so I gave up. I'm fine now and back to my normal routine but this brings to mind something I've been thinking about.
At my last checkup I was talking to my doctor about the problems I've had with my kidney function and with this anemia. I asked him if loosing an organ like the bladder - even replacing it with something that functions the same - doesn't make the rest of the body more prone to problems. He answered; "Yes, definitely." I asked this because I don't like things that don't work properly - including my body. I have always come away from physicals with an absolutely clean bill of health (even my draft physical where I might have welcomed something less). I am now 62 and I don't take any pills and I never have. Is this pure luck? Maybe, but ten years ago my doctor told me my blood pressure was too high and I'd have to start taking pills. I immediately changed my life style. I changed how and what I ate (and drank) and I started riding bike to work every day. In the first month I lost 30 pounds (and I've kept it off). My next check up was normal once again and I've heard no more threats about pills from my doctor.
So at this latest physical, my doctor went on to say that I should continue to do as much as I can to keep healthy and to stay physically fit. This is important to everyone but it is critical to someone like me who has had cancer treatment (and this sort of surgery).
Since my surgery I have learned that my Neo-Bladder is very good at performing the main function of my original bladder (storage and delivery of urine). But it doesn't have all the bells and whistles of the original. How can it? Who knows for sure what all it did to contribute to the overall functioning of the body as a system. One example I've learned about are the one-way valves in the bladder where the tubes from the kidneys connected. These prevented the back flow from the bladder to the kidneys as the bladder filled and pressure increased. The kidneys apparently don't 'like' this back-flow and it can interfere with their function of removing waste from the blood. This puts more stress on the kidneys and who-knows-what other systems in the body. So it's important for me to think about my kidneys when I decide what to eat and drink. Like drinking at least 8 glasses of water a day. And maybe not waiting so long between trips to the bathroom although this is hard because there's really no sensation of fullness, in the neo-bladder, until it gets really full (and starts pressing on things around it ??)
I think of this body as being like a football team (timely being a Packers fan). The team is made up of all it's individual players. Each player must be designed for their particular function in the system (physique, talent, training, and experience). To succeed as a team, each player must contribute this function to the whole - hold up their end of the load. Each must also contribute things that are called intangibles like spirit, leadership, esprit d corps, drive, determination, focus, etc. Each player must be in top physical condition in order to endure the demands of the game. This becomes even more important when one player goes down with injury - or otherwise leaves the team. The substitute will usually be somewhat less capable and all the other players must work a little harder to compensate. (In my case a piece of intestine was pulled out of the offensive line to replace an injured wide receiver.) Hopefully they will all be strong enough, and the playing conditions will not be too grueling (Packers have home field advantage throughout the playoffs), and the opponent not too overpowering for the modified team to prevail and win this, and any future contest.
So I'm trying to ride my bike at least three times a week. I ride to where I used to work before retirement (~ 8 miles round trip) where I still have an office. I hope to take up cross country skiing when and if it finally snows in southern Wisconsin and I can no longer ride. I continue to umpire over 100 games a summer (chasing kids around a ball diamond). And I spend as much time as I can in our woods - trimming trees, planting, thinning, and just walking around looking at the trees, plants, and animals that live there. I hope this will keep all my players 'in the game'.
3 comments:
This is another interesting and highly plausible idea. Have you asked your doctor if there is any research on the longterm systemic impacts of the surgery? How could the "team" NOT have to adapt to the removal of such a vital organ, and the relocation/reassignment of another?
ps Good luck to your PACKERS.....
Yeah, Go PACK.
Good idea. I haven't talked about teams with my doctor or my surgeon. My surgeon stated that you have to be 'young' and in relatively good physical condition to qualify for the neo-bladder option. I took this as being important to tolerate the longer surgery and recovery but it also seems to apply to life after surgery. I was surprised to learn that the neo-bladder is not necessarily a permanent solution. If, at some point, my body (the rest of the team) ceases to be up to the task (eg. one kidney fails) they may have to replace the neo-bladder with a bag in order to save the other kidney. Which, I think, is the same story from a surgeon's perspective.
I guess I haven't answered your question. I don't plan to see my doctors until summer so maybe someone else has an answer.
Sorry about your team. Ok, not really.
How would "disconnecting" the neobladder relieve stress on the kidneys? I do understand the absence of the natural "reflux" prevention that the original plumbing provides--is that the issue?
The neobladder is a pretty amazing thing and restores life to a near-normal state after such a terrible, dark period. But as you articulate so plainly, it's not a perfect solution. I wonder how many of them (neobladders) stay connected permanently.
It's evident that research for this kind of cancer is not as robust as for other kinds...it seems there should be an even better replacement solution by now.
Post a Comment